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Children's OI Family Resource Fund Page


Because Each Child Is Unique

The Osteogenesis Imperfecta Clinic at Children's Hospital & Medical Center is recognized worldwide for its expertise and leadership in treating children with brittle bone disease, also known as osteogenesis imperfecta (OI). In years past, many children with OI faced a future filled with pain, bone fractures, surgeries, casts and immobility. However, today, thanks to advanced techniques like those used at the OI Clinic at Children's, patients have the opportunity to live a more active lifestyle and have hope for a brighter future.

Because each child with OI is unique, not only as an individual but also in diagnosis, having access to resources for the family is important. Thus, the Children's OI Family Resource Fund was born.

The Children's OI Family Resource Fund was the brainchild of a passionate father to a current OI patient. Dr. Neel Desai is a family physician who advocates for more awareness and education about his son's condition and all those affected by OI. This newly formed consortium of families with children under treatment at the Children's OI Clinic has a mission of being a resource for OI families.

The Children's OI Family Resource Fund has been established in cooperation with OI Clinic leadership and the Children's Hospital & Medical Center Foundation. Short-term organizational goals include:

  • generating awareness for Osteogenesis Imperfecta
  • providing travel funding or meal vouchers for needy families
  • providing splinting kits
  • support training for OI staff
  • seek funding for clinical research for children and adults with OI

Long-range plans include establishment as a legal 501c3 organization with funding to support an Adult OI Clinic and national research grants. 

To learn more, read our patient family stories:

     *  The Browne Family Story

     *  The Desai Family Story

or, Give to Children's OI Family Resource Fund.

To apply for funding, download the form here.